Jeff's Dream (Living with Nager Syndrome)

Jeff's Dream (Living with Nager Syndrome)

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Jeff is diagnosed with Nager syndrome and communicates using assistive technology. This rare diagnosis results in shorter arms that prevent him from driving. Jeff dreams that one day there will be an adaptable car that provides him the freedom to travel independently. SBSK Patreon: Like SBSK on Instagram: Facebook: Twitter:

Hallermann-Streiff Syndrome (Fewer than 200 Known Cases)

Michelle is diagnosed with Hallermann-Streiff syndrome and is literally one in five million. She hopes to one day meet a long-haired man who is in touch with

Understanding Ryan (Phelan-McDermid Syndrome)

Ryan is 1 of only 1500 people to be diagnosed with Phelan-McDermid syndrome. Many underestimate his intelligence due to the unique characteristics associated wi

The Hartley Hooligans

Claire was born with a combination of conditions that left many thinking she was one of a kind. That was until her sister was born with the same diagnoses five

Mike's Hope (Brain Injury After a Motorcycle Crash)

Mike survived a motorcycle crash that left him with a brain injury. This changed the way his body functions yet his intelligence remains intact. Mike's biggest

"WE GOT A JOB!" Abby and Britt, The Conjoined Teachers, Get Hired

SUBSCRIBE HERE: Abby and Brittany Hensel are officially hired as elementary school teachers! After graduating from college and a year

This Cute Little Boy Was Born Without A Nose, But After A Few Days This Happened

Eli Thompson was born without a nose and had a tough start in life – but he stole the hearts of people across the country with his personality and charm. He

Jeff's Journey (Nager Syndrome)

Jeff is diagnosed with Nager syndrome. He hopes that instead of staring you take the time to talk to him about "sports, animals and Disney." SBSK Patreon: http

The Miracle Mann (Thanatophoric Dysplasia Dwarfism)

Samuel was born with a rare form of dwarfism and not expected to live more than a few months. At 11 years old Samuel has defied all odds. He is 25 pounds, 26 i

Woman Shrinks As She Ages, Drs Say Girl Has ‘Vanishing Bones’ That Are Disappearing From Her Body

Woman Shrinks As She Ages, Drs Say Girl Has ‘Vanishing Bones’ That Are Disappearing From Her Body If you're new, Subscribe! → Extr

Ruby the Treasure (Stromme Syndrome)

Ruby is 1 of 12 people in the world diagnosed with Stromme syndrome. She hopes that those who get to meet her take a moment to say "hi." SBSK Patreon: https:/

Liz's Humanity (Chromosome 18 Deletion)

Elizabeth was born without a part of Chromosome 18. Her biggest wish is that others will ask questions instead of rushing to judgement.

Bella's Reality (Pfeiffer Syndrome)

Bella is diagnosed with Pfeiffer syndrome, a condition that affects the shape of her skull. She wishes that other children would just say “hi” and accept th

Born Without a Part of the Brain (Agenesis of the Corpus Callosum)

Jude is diagnosed with multiple brain abnormalities. He sees the world as a beautiful and wondrous place. Other children are sometimes turned off by Jude's ent

Garett's Purpose (Brain Injury Survivor now Nonverbal)

Garett lost the ability to control his body after surviving a brain injury. Although he faces countless obstacles, Garret still has the need to connect with ot

The Family that Adopted 5 Medically Fragile Children

The Summers family adopted five children that are medically fragile. It is their goal to ensure that each member of their family is as happy and healthy as poss

Adalia Rose (Progeria)

Adalia Rose is diagnosed with progeria, a rare genetic condition that results in accelerated aging. She has decided to ignore the haters and shine as bright as

A Friend with Angelman Syndrome

Conor is diagnosed with Angelman Syndrome and communicates mostly through physical gestures. Brendan, his brother, worried that his peers may not understand Co

Living With 12 Personalities (Dissociative Identity Disorder)

Lauren lives with dissociative identity disorder and has twelve distinct personalities. Each manifests as a voice inside her head that Lauren describes as “a

Living in a Body of Open Wounds with Less than Half His Skin (Epidermolysis Bullosa)

John lives with epidermolysis bullosa, a condition that leaves his body covered with open sores. He has over half half his skin and is constantly battling sever
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